Pediatric Patient Tool Kit

Has your child been recently diagnosed with autoimmune hepatitis (AIH)? We have the most important things you need to know about AIH so you can quickly get up-to-speed on this treatable disease and know what to expect as a pediatric patient or caregiver.

Patient and Family Support

School Support

Mental Health Resources

Medication Adherence

Transition to Adult Care

Choosing the Right Doctor

Questions for Your Doctor

Tips for Doctors Visits

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Information/ FAQ

AIH: The Basics

 

Autoimmune hepatitis (AIH) is a chronic disease that causes patients’ immune systems to attack their livers and sometimes damage them. With treatment, most patients don’t need liver transplants and have normal life expectancies.

Download a printable brochure in English and Spanish to share important information about AIH with family, friends, and others who might need to better understand what you’re going through.

Your Care

We know how stressful an autoimmune hepatitis diagnosis can be for patients and their families. We’ve put together the following resources that we hope make it easier for patients and families to navigate this disease:

Patient and Family Support: We’ve got education and tips for each family member.

School Support: Need help sharing AIH information to school personnel? Unsure of how to get your AIH patient the accommodations needed to be successful in school? We’ve got you covered.

Medication Adherence: Need help with taking your medications consistently? Our guide gives helpful tips and tricks to try.

Transition to Adult Care: We’ll help you get started on how to transition from pediatric healthcare to adult healthcare.

Mental Health: Learn more about how anxiety and depression may impact autoimmune hepatitis (AIH) patients and what you can do to help alleviate symptoms.

Choosing the right doctor: How do you know if you’re seeing the right doctor to treat your AIH? We can help.

Questions for your doctor: We break down what questions you should be sure to ask your doctor at your next appointment.

Tips for doctors visits: We’ll help you get the most of our medical appointments.

FAQs for newly diagnosed patients: Check out the top questions that newly diagnosed patients have.

Download a printable brochure in English and Spanish to share important information about AIH with family, friends, and others who might need to better understand what you’re going through.

Be sure to check out other resources on our website, like causes, symptoms, diagnosis, treatments, and living with AIH.

 

FEEDBACK

The AIHA would love to hear your feedback on our Pediatric Tool Kit! What are we missing? What would be helpful to you? Share your thoughts by emailing mapolzan@aihep.org.